Family Experiences During Pregnancy
Researchers from Hunter College, City University of New York and the University of North Carolina, Charlotte are looking to understand families’ experiences during pregnancy when they have a diagnosis that made them eligible for early intervention for infants and toddlers with or at risk for developmental delays or disabilities. We want to understand how early intervention programs might help families during pregnancy.
What Will We Do?
You will be asked a series of questions during a 45-60 minute interview. We will ask you about:
- What helped you during your pregnancy
- What else you might have wanted
- How you think early intervention could help
Who Can Participate?
- Are 18 years of age or older
- Have a child 8 years old or younger
- Were eligible for the Early Intervention program based on that child’s diagnosis and
- Knew that diagnosis during pregnancy
How Can I Participate?
Contact one of the following researchers leading the project:
Dr. Bonnie Keilty, Hunter College Email: firstname.lastname@example.org Phone: 212-772-4709
Dr. JaneDiane Smith, University of North Carolina, Charlotte Email: email@example.com Phone: 704-687-8850
Click here to view Research Opportunity Flyer
State Systemic Improvment Plan for Early ACCESS
The State Systemic Improvment Plan (SSIP) is the 11th indicator in the Annual Performance Report. Reports are submitted to the US Department of Edcuation Office of Special Education (OSEP) responsible for the supervision of early intervention program across the US. Below are the state of Iowa's Early ACCESS SSIPs submitted by the Iowa Department of Education.
Department of Psychology: University of Iowa
This study examines the relationship between brain development and how children think using behavioral and brain measures. The study hopes to develop understanding of the brain changes that underlie aspects of development from infancy into early childhood, including key changes in perceptual development, language development, and decision-making abilities.
- Age: Children who are 3.5 years old (+/-3 weeks) or 4.5 years old (+/-3 weeks)
- Activity: Decision making task comparing differences in simple pictures. The researchers will track the child's brain response through looking and pointing movements.
The InCoDe Lab
Department of Psychology: University of Iowa
This study examines how babies communicate and learn language. The study will work with monolingual English-speaking children with normal speech and hearing development.
- Age: 14-24 month old babies
- Activity: Babies will be shown a variety of toys to see how the infant communicates. After the interaction, the child may be shown the toys that she or he just saw, and may be asked some questions about those toys.
University of Iowa
Department of Communication Sciences and Disorders
Researchers study children throughout the state of Iowa ages 4-9 that have difficulty with past tense 'ed' verbs. The study tests the efficacy of two different generally accepted ways of providing treatment for this disorder.
- Age: Children with language impairment who are between 4 years old and 9 years old
- Activity: 12 week intervention and therapy which tests ways to teach children grammar
Iowa ACEs 360
Between 1995-1997, a survey was taken by adult members of a group health insurance plan, the Kaiser Health Plan in San Diego, CA. Investigators Dr. Vincent Felitti (founder and chief of Kaiser Permanente's Preventive Medicine Department) and Dr. Robert Anda (CDC's Epidemic Intelligence Service) confirmed their suspected link between what's now known as Adverse Childhood Experiences (ACEs) and later behaviors and health outcomes.
It was the largest study ever done looking at short- and long-term impacts of childhood trauma. The study links childhood trauma with the adoption of serious health, social, and economic risks. It is now known as the Adverse Childhood Experiences Study.
Iowa is one of 19 states now measuring ACE data.
Results from the initial ACEs Study influenced many Iowa organizations, including Mid Iowa Health Foundation, the United Way of Central Iowa, the Iowa Department of Public Health, as well as many others, to form a taskforce (Iowa ACEs 360) and eventually implement an ACEs Study in Iowa. The study was initiated in 2012 as part of the annual Iowa Behavioral Risk Factor Surveillance System (BRFSS). http://www.cdc.gov/brfss/
Check out the results of the survey at Iowa ACEs 360.
Communities and organizations have been developing creative responses to address The ACE Study findings. Together these responses are creating a system that is working to prevent ACEs and to reduce and treat their effects among individuals, families and communities.
If you know of additional studies highlighting child development or developmental disabilities in children, please contact Meghan Wolfe at Meghan.Wolfe@idph.iowa.gov.